Chronic Conditions
Acid Sphingomyelinase Deficiency (ASMD)
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Organizational Resources
The National Niemann-Pick Disease Foundation, Inc. (NNPDF) is a non-profit, patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by Niemann-Pick disease, through education, collaboration and research.
International Niemann–Pick Disease Alliance (INPDA) is an organization that works with the International Niemann–Pick Disease Registry (INPDR) to develop guidelines for ASMD diagnosis, treatment, and monitoring.
The National Institute of Neurological Disorders and Stroke is a part of the U.S. National Institutes of Health. It is the nation’s leading funder of research on the brain and nervous system.
